DRILL Blog and News

News; Focus group for the “Is it Me?” Project

Adult Social Care Research and Action

We are inviting disabled people in the North-West area to our session on research and action for the adult social care system in Northern Ireland.

Tuesday 16 November 2018

From 12.00pm to 13.00pm

In Disability Action, Derry

58 Strand Rd, Londonderry BT48 7AJ

If you are a disabled person living in the North West Ulster area you are invited to take part in our session in adult social care. The session will start with a focus group on attitudes impacting on independent living choices. You will be part of a focus group with around 15 other disabled people.  The focus group will be facilitated by Ivanka who is the lead researcher.  This discussion will focus on the attitudes you have experienced in relation to social care and independent living.  You don’t need to be an expert to take part  – it is just your experience that we want to hear.

We will cover all travel expenses for those attending and all the papers are available in a range of formats on the day – just let us know your requirements when you book.

To register for the focus group and for reasonable adjustments, please contact Ivanka Antova on Telephone: 028 9029 7880 or email [email protected]

For further information on the project please follow the www.drilluk.org.uk/is-it-me-how-do-attitudes-within-the-socail-care-system-impact-on-the-independent-living-choices-of-disabled-people/

News: 2 upcoming events Access to Justice for the Deaf Community NI

The British Deaf Association are facilitating 2 upcoming events in Belfast this October. Please visit links for more details.

Access to Justice Poster 2018 (5) BDA 2

5th  October 2018

Police Service for
Northern Ireland
Tour & Information Session
Come and find out about the processes
used in a police setting, have a tour
of the facilities and a chance for a
questions and answers session.

PSNI Counsultation BDA 1

18th  October 2018

The Northern Ireland Policing Board and the Police Service of Northern Ireland now need your help in order to plan how they will deliver policing in your community.

For further information about the project please visit implementing-article-13-uncrpd-enhancing-deaf-peoples-communication-access-justice-northern-ireland

News: DRILL Focus Group on Adult Social Care Research

We are inviting disabled people in the Mid-Ulster area to our session on research and action for the adult social care system in Northern Ireland.

 Tuesday 9 October 2018

From 13.30pm to 14.15pm

In Youth Resource Centre, Cookstown

74 Fountain Rd, Cookstown BT80 8QF

If you are a disabled person living in the Mid-Ulster area you are invited to take part in our session in adult social care. The session will a focus group on attitudes impacting on independent living choices. You will be part of a focus group with around 15 other disabled people.  The research will be undertaken by Ivanka who is the lead researcher.  This discussion will focus on the attitudes you have experienced in relation to social care and independent living.  You don’t need to be an expert to take part – it is just your experience that we want to hear.

We will cover all travel expenses for those attending and all the papers are available in a range of formats on the day – just let us know your requirements when you book.

To register for the focus group and for reasonable adjustments, please contact Ivanka Antova on Telephone: 028 9029 7880 or email [email protected]

For further information on the project please visit is-it-me-how-do-attitudes-within-the-socail-care-system-impact-on-the-independent-living-choices-of-disabled-people/

 

Blog: (ALLFIE) Let’s work together to make secondary schools more inclusive: Could you tell us about your experiences?

As a Disabled researcher, my academic research into British schools has shown that most Disabled children feel they are excluded at school and often bullied. I now work with the Alliance for Inclusive Education (ALLFIE). As a Disabled-led organisation, we have been particularly concerned about school budget cuts and the impact that cuts have on children with special educational needs or disabilities. Families believe that thousands of children across the UK with special educational needs are currently unable to receive the support that they need. Our recent campaigns around this issue won support from the Local Government Association.

We have recently been funded by Disability Research on Independent Living & Learning (DRILL) to conduct a research project about Accessibility Plans. We are exploring the experiences of Disabled pupils, their parents and educators in schools. We hope this project will support work to enable Disabled children and young people to feel more included and part of their school communities in every way.

The project will explore the stories and opinions that people share in focus group discussions to understand any gaps between the aims of the law, and the real-life experience of people in schools. The project advisory group includes a Disabled academic and a parent of a Disabled child to make sure these perspectives are considered in how the research is done.

The Equality Act 2010 and the Equality Duty 2011 highlight schools’ responsibilities to produce Accessibility Plans. Accessibility Plans are intended to help Disabled children and young people to make best use of the education, benefits, facilities and services available to them. Schools and local councils are required to plan for:

  • Increasing access for Disabled pupils to the school curriculum. This covers teaching, learning and the wider curriculum of the school, such as participation in after-school clubs, leisure and cultural activities or school visits.
  • Improving access to the physical environment of schools. This covers improvements to the school buildings and outdoor areas, as well as physical aids to access education.
  • Improving the delivery of written information to Disabled students. This includes making things like handouts and timetables available to Disabled pupils. The information should take account of students’ impairments and learners and parents’ preferred formats and should be made available within a reasonable time frame.

In principle, Disabled children should feel more included in their school community and have a more equal educational experience as a result of the improvements made through schools’ Accessibility Plans.

Schools must, and academies should, publish their Accessibility Plans on their websites – but there is no requirement for schools or academies to share this information with OFSTED. Inspectors may consider Accessibility Plans as part of their pre-inspection analysis, but the information is not routinely recorded or collated centrally.

In my initial research for this project, I also learned from Freedom of Information requests that not all local councils in England have an accessibility strategy in place for the schools they are responsible for. Even if they do, many of these are either insufficiently detailed or out of date.

Most local councils in England do not monitor how many schools have Accessibility Plans, as this is not a legal requirement, and neither does OFSTED – so there is no evidence to demonstrate how effective the plans are for Disabled children and young people. It is also unclear how well-informed parents are about the Accessibility Plans of their children’s schools, or how much they have a say in creating them.

The impact of this oversight can be felt by Disabled pupils and their families. As they begin to think about the transition to secondary school, Disabled young people and their families may struggle, fight and compromise in order to achieve a reasonable outcome for their children. In most cases Disabled students are not only required, but also expected, to leave behind their friends and attend a school deemed accessible by their local education authority, only to find upon arrival that the school may not be as accessible as they had initially been led to believe. If nothing changes for the pupil, it is almost irrelevant that there is even a plan in place. An Accessibility Plan must be effectively implemented if it is going to make a difference to students’ lives and improve their ability to access education alongside their siblings, friends and classmates.

We will hold focus groups for the project in four regions in England – concentrating on Leeds, London, Bristol and Manchester. In each location, there will be three focus groups: one for Disabled young people and children, one for parents of Disabled learners, and one for educators and professionals. The focus groups will be held in October and November 2018, starting in Leeds.

Dates and times – Leeds focus groups:

Parents – Monday 8th October, 11:00-13:00

Disabled children & young people – Wednesday 10th October, 16:00-18:00

Educators and professionals – Friday 12th October, 16:00-18:00

 

Location:

John Lewis Community Hub meeting room, Leeds City Centre

Victoria Gate, Harewood St, Leeds LS2 7AR

Further groups will be held in other regions throughout England in autumn. Even if you don’t feel well-informed about Accessibility Plans, why not get involved and share your own experiences with us?

Even in schools where Accessibility Plans are in place, participants may feel they are not generally implemented or have not been regularly reviewed. Better understanding of this area should help Disabled learners and their families challenge inadequate Accessibility Plans. The findings will inform policy and debate on this subject at a national level. The project will help ALLFIE in pressing for change and may assist education providers producing the plans, as well as local authorities guiding Disabled learners.

Learning about a diverse range of people’s first-hand experience will help us work toward empowering future generations of Disabled people by increasing their education opportunities and removing barriers. Help us help you to get Accessibility Plans which really work.

If you are interested in getting involved in the focus groups, or would like more information about the project, please contact me at [email protected].

Please feel free to share this blog with anyone you feel may be interested in our project.

For further information on the project please visit

Blog: Mental health and physical activity in Northern Ireland. Mental Health Foundation.

Most people know that engaging in physical activity is not only important for our physical health, but also for our mental wellbeing.

Much of the existing research focuses on the impact of physical activity on depression, with multiple studies finding that physical activity is associated with a reduction in depressive symptoms. The Royal College of Psychiatrists states that a moderate level of exercise can be as good as antidepressants or cognitive behavioural therapy (CBT).

The relationship between physical activity and mental health appears to work both ways1, with increased physical activity resulting in better mental health and vice versa. Not surprisingly, then, those with severe mental health problems are less likely to engage in physical activity and are more likely to be physically unwell.

The evidence for the positive effects of exercise on a range of mental health problems is growing, with studies demonstrating that exercise can improve the lives of people with schizophrenia2.  Despite this, exercise interventions are often neglected in mental health care3 and the mortality gap for people with serious mental health problems continues to widen. This is particularly pernicious in Northern Ireland, a country in which the recent political turmoil has exacerbated the mental health crisis to catastrophic proportions.

The Mental Health Foundation, along with several partners, including Queen’s University Belfast and three Recovery Colleges (Northern Recovery College, South Eastern Recovery College and Western Recovery College), has received funding from DRILL (Disability Research on Independent Living & Learning) to conduct a one-year pilot study to address the high levels of physical ill-health and preventable deaths of people with serious mental health problems in Northern Ireland.

What the study will involve

Co-production will inform the entire study. Individuals with lived experience of psychosocial difficulties will receive accredited training from Queen’s University Belfast to become peer-researchers on this study. They will then have an instrumental role in co-producing the programme design, research methodology, analysis, research findings recommendations and promotion.

The physical exercise programme, targeted to people with a range of serious mental health problems, will be developed from a series of co-production workshops with people with lived experience, and consultations with recovery colleges, sports organisations and health professionals.

Participants will undergo tailored health checks to determine the programme’s impact on participants’ physical and mental health measures. The sustainability of the programme will be explored via interviews and consultations with partners, and recommendations and next steps will be identified.

The shocking fact that more people in Northern Ireland have died by suicide in the past 18 years than were killed during 30 years of conflict highlights the urgency of the situation. Mental health problems can no longer be ignored, and innovative, creative approaches and solutions should be explored.

This is exactly what we seek to do with our partners through this large-scale physical exercise programme designed to empower people with serious mental health problems to incorporate physical activity into their lives. Not only does this innovative study seek to develop the evidence base for physical exercise interventions in mental health, it also hopes to provide practical solutions that will improve the delivery of services in Northern Ireland.

For further information please visit (https://www.mentalhealth.org.uk/blog/mental-health-and-physical-activity-northern-ireland

& project page

Press release: University of Bedfordshire, Disabled parents often seen as risk to their children rather than given support, report warns

Health and social care services are failing disabled parents and their children, a report published today suggests.

Disabled parents told the report’s authors that health and adult social care professionals assessing their needs often ignore the parenting implications of their impairment and fail to communicate with their counterparts in children’s services.

Meanwhile, children’s social care professionals too often see the parents’ impairment as a potential risk to their children and prioritise monitoring over meaningful parenting support that would keep families together and avoid crisis interventions. Disabled people are therefore too anxious to seek support for fear they will be seen as failing.

The research was undertaken by the Tilda Goldberg Centre for Social Work & Social Care at the University of Bedfordshire and Ginger Giraffe, an organisation that brings together disabled people with health and social care students on placement.

The funding was provided by the DRILL (Disability Research on Independent Living and Learning) programme, a £5m scheme led by disabled people and funded by the Big Lottery Fund.

The report includes accounts from disabled parents, including those with mental health problems. It shows that health and social care professionals are not following government guidelines around family assessments and eligibility for social care support.

One parent told researchers: “You don’t want to call social services, you are scared to call them because they might think you are incapable of looking after the child, so you have to struggle with what you have… because then they will say, ‘we told you she’s disabled, she can’t look after her child’, so there’s always that element of fear, of ‘shall I or shall I not?”.

The report concludes that children are largely invisible to adult social care and health professionals. One parent with mental health problems said that when she was sectioned she was asked if she had any pets that required care but not about her children.

Social care professionals planning post-discharge support for a mother of two children who had broken her back decided she should receive meals on wheels – but that food would not be provided for her children.

The same woman told the research team of a later experience: “Somebody knocked on the door and they said they were a children’s social worker. I panicked, I thought ‘what did I do wrong for them to come in?’, and I asked, ‘who sent you here?’ and they said, ‘Oh it’s because you are disabled’.”

Director of the Tilda Goldberg Centre at Bedfordshire, Professor Emily Munro said: “It was shocking to find that many disabled parents were often too scared to ask for help from social services for fear of being judged unfit to look after their children. There needs to be a more collaborative working relationship between children’s social care and adult services to ensure disabled parents can access the vital they need in order to fulfil their parenting role.”

Director of Ginger Giraffe Dan Vale added: “The power of this research is that it is truly coproduced by our disabled parents and the social work professionals, resulting in an authentic and eye-opening account of the experiences of a group of dedicated mothers and fathers whose disability proves no barrier to parenting, but for whom support was haphazard and ill-coordinated.”

Sue Bott from Disability Rights UK said: “This research gives a much-needed voice to disabled parents. Now professionals and policymakers need to listen to them. While we recognise the complex demands facing health and social care professionals, they should work with each other and with disabled parents to provide the support that keeps families together”.

 

Press release: Love it or hate it? Here’s your chance to Rate it! 17 September 2018

Rate it!, the new product review website written by and for disabled people,

would like to hear about the products you’ve found useful to make daily life easier.

And what about the ones that don’t help?

For too long, there hasn’t been anywhere for disabled people in the UK to share their views

and read reviews about small- to medium-sized products that can help with leading an independent life.

Rate it! aims to change all that! We want to build a community of readers, reviewers and commenters

who are better informed about their choices when buying and using goods.

Denise Stephens of Enabled by Design says:

“Through our experience and research, the Rate it! team has been aware of the importance of product reviews

in supporting disabled people to make informed choices when buying products. Ninety per cent of respondents

in Scope’s Extra Cost Commission 2015 report said reviews were a priority for them. Inspired by this, we’ve

provided a high-quality online space where people can research, review and share knowledge about specialist

and mainstream products, all in one place.”

The Rate it! project is run by three user-centred organisations: the Research Institute for Disabled Consumers,

the Leicestershire Centre for Integrated Living, and Enabled by Design.

It’s funded by the Big Lottery Fund through DRILL (Disability Research on Independent Living and Learning),

the world’s first major research programme led by disabled people.

Rate it! has been launched to provide independent reviews written by you, the experts who know exactly what works

and what doesn’t. Help make this a success – sign up today and Rate it! bit.ly/RateitSignUp

PS: Every month Rate it! is giving away a prize. Every review written at bit.ly/RateitSignUp will count as a single entry.

For September, the prize is an Amazon Alexa. As it’s the start of the school and college year, what about reviewing products that make studying easier?

ENDS

For further information, please contact:

Chris Lofthouse, Outreach Manager, RiDC: [email protected] Tel: 020 7427 2460

Notes

The Research Institute for Disabled Consumers (RiDC) is the UK’s leading expert in user-centred research

involving disabled and older consumers. We’re an independent charity with over 50 years’ experience of

specialist research. Founded by the Consumers’ Association, now Which?, RiDC has over 50 years’ experience

of specialist research and publishing high-quality information. www.ridc.org.uk

The Leicestershire Centre for Integrated Living (LCiL) is a user-led organisation based in Leicester which works

in innovative ways based on the social model of disability to support disabled people at a local, regional and

national level to exercise choice and control for independent living. www.lcil.org.uk

Enabled by Design (EbD) is a community of people who are passionate about Design for All. They believe that

good design can support people to live independently by helping to make life that little bit easier.

EbD was inspired by founder Denise Stephens’ experiences following her diagnosis of multiple sclerosis in 2003. www.enabledbydesign.org

Disability Research on Independent Living and Learning (DRILL) is the world’s first major research programme

led by disabled people. DRILL is fully funded by the Big Lottery Fund and is delivered in partnership by

Disability Action, Disability Rights UK, Disability Wales and Inclusion Scotland. www.drilluk.org.uk

Please see project page for further details

 

 

 

Blog: DRILL funded “Match Me” Project Advisory Group members share their experience so far…

Margaret Follon, Chair of the Project Advisory Group:

I was delighted to be asked to chair the Advisory Group for the Match Me research project. It has been a real pleasure to meet both the research group from Stirling University and the other members of the group who have come from a variety of backgrounds.

Our first meeting was spent getting to know one another and was a very positive start to the programme. Our most recent meeting involved hearing more about the extensive work of the research team, and Dianne and Julia [Project researchers] did a very thorough job of taking us through the work to date. It was also an opportunity for us to hear about the work of the peer researchers which was very effectively outlined by Glen.

I am looking forward to hearing about the next stage of the work over the next few months and to meeting up again later in the year.

Jean Morrison, Project Advisory Group Member:

I felt honoured to be asked to join the PAG

My interest lay in the provision for and access to housing disabled people.  My experience lay in my association with a local Aberdeen group that helps match disabled people to housing in the city.

The results of the research will provide housing providers across Scotland with the underpinning research that will help them amend existing and/ or create new allocation policies that will remove some of the stress for disabled people to find suitable housing

Ann Marie Penman – Project Advisory Group Member

Up until 5 years ago, housing was never an issue for me and my family. However, our circumstances changed significantly at that time and we suddenly found that we needed adapted, accessible housing. It hasn’t been easy trying to get this and I’ve been very grateful to have the support of the charity Housing Options and housing association Horizon. I was therefore delighted to be asked by Housing Options to join the steering group for the Match Me project as my own experience had led to a wider interest in access to adapted social housing.

The meetings and discussion with the project team have been extremely interesting covering everything from the practicalities of engaging with those involved through to research ethics. I’ve been able to use some of my own experiences to contribute to discussions and learnt a lot from others involved.

I’m looking forward to the final report and recommendations as I know from the interim findings that although there is some good practice there are also still far too many disabled people not able to access suitably adapted housing.

For further information about the Match Me project, contact:

Professor Isobel Anderson, University of Stirling at [email protected]

July 2018

For further info please follow link to project page 

The DRILL Programme is now advertising two Tender Opportunities.

Please click on the links below, which will take you directly to the Tender page where you will find all of the details required.

Including Missing Voices

Getting our Voices Heard

 The DRILL Programme is in its fourth year, we are now commissioning to fill specific gaps that have been identified.

DRILL’s aim is to enable disabled people to achieve independent living and inform future policy and service provision, as well as give a greater voice to disabled people in decisions which affect them.

We welcome Tenders with a strong emphasis on co-production. The Contract period for each will be 12 months with a maximum contract value of £100,000 (inclusive of VAT).

The deadline for Tender submissions is the 27th November 2018 at 12 noon.

Please have a look and contribute towards the legacy of the DRILL Programme.

 

A free one day conference on the 21st September

‘Parentability’: Reimagining social care services with disabled parents and professionals

You are invited to a conference to showcase findings from a Disability Research on Independent Living and Learning (DRILL) and Big Lottery funded research project that was conducted by the Tilda Goldberg Centre for Social Work and Social Care, University of Bedfordshire and Ginger Giraffe working in co-production with disabled parents.

The event will illuminate disabled parents’ experiences of contact with adult and children’s services, provide an opportunity to reflect on the strengths and limitations of current models of service delivery, as well as exploring potential strategies to promote best practice.

For further information about the event and details on how to book a place, please see the attached flyer.  Places are limited so please book now to secure a place.

The conference venue is a 10-15 minute taxi ride from Luton train station and there is ample parking on site.  The venue is wheelchair accessible.  If you require any accessible adjustments please let us know when you get in touch with us.

Parentability Flyer

Please click the following link for further information about the project

#DRILL HASHTAG FEED

Tweets from @drill_uk

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“is it me?” a #Drilluk & #Nationallottery funded project are inviting disabled people in the North-West Ulster area… https://t.co/FIF8x7kqQ8

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“Is it me?”https://t.co/43GzaaaYjn a #drilluk & #Nationallottery funded project would like to invite disabled peopl… https://t.co/CLf5uaByuf

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https://t.co/d1wkWBJn6g
Closing date 27 November 2018 12Noon.

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