Blog Post: Humare Avaaz – Our Voice (Part 1)

 

Humare Avaaz – our voice. We thought it was a great name for community research into the barriers to independent living faced by disabled women in London’s Asian Communities. And so it has proved to be. However … It’s funny how you underestimate or don’t anticipate things!

 

The Asian People’s Disability Alliance (APDA for short) is a true DDPO. It was founded on the principle of co-production, or whatever it was called 25 years ago. We have an experienced project manager with an academic background and a well-known and experienced lead researcher, an expert in the field. What could go wrong? Well nothing actually went wrong, in fact the reverse, but boy, what a learning curve. Talk about tales of the unexpected.

 

‘This should all be reasonably straightforward’, said he. The methodology was simple and tried and tested. The implementation plan was elegant and the budget was sufficient. However, none of us had been involved in co-produced community-research in which the co-researchers would be disabled, few have is our understanding. Perhaps we should have seen it coming, financially we had anticipated appropriate support costs but the best laid plans etc.

 

It’s just the way it is. It has proved far more time-consuming than anticipated to arrange training, focus groups and interviews etc. only to have to change plans at the last moment for perfectly good reasons. Oh for the simplicity of quantitative research! But that would achieve very little for Humare Avaaz.

 

We also underestimated the interest our own service users would bring to the initial focus groups, designed to set the agenda. Interest isn’t really the right term; more a release of pent up frustration at not having been listened to for, in some cases, decades. Humare Avaaz really is a great, even emotive, name.

 

A carefully prepared-for first focus group, prepared for in the sense of structuring it around reasonably expected responses – we’ve doing this for a while after all – not in the sense of the antithesis of co-production, was ‘interesting’. Money spent on an iPad and a note-taking app with a synchronised recording facility absolutely saved the day. We naively thought that reasonable meeting protocol would apply! Just as well all present were happy for the groups to be conducted in English! On reflection, why would we assume that that the hitherto voiceless would follow the rules of those easily heard! Such a meeting was a complete novelty.

 

Just when we thought we had sorted out initial teething problems, one of our original partners pulled out – they had lost their core grant funding. This delayed the steering group but was fortunately easily solved with the proactive support of Disability Rights UK.

 

So, what is our co-produced meaning of ‘independent living’? What are the barriers faced? It is our voice after all. Next time …

 

Stay tuned for part two of the blog in the New Year!

Find out more about the project – Humare Avaaz (Our Voice) – exploring the experiences and barriers faced by disabled Asian Women

#DRILL HASHTAG FEED

Tweets from @drill_uk

Spinner Loading new posts...
DRILL UK DRILL UK @drill_uk

“is it me?” a #Drilluk & #Nationallottery funded project are inviting disabled people in the North-West Ulster area… https://t.co/FIF8x7kqQ8

12 hours ago
DRILL UK DRILL UK @drill_uk

“Is it me?”https://t.co/43GzaaaYjn a #drilluk & #Nationallottery funded project would like to invite disabled peopl… https://t.co/CLf5uaByuf

12 hours ago
DRILL UK DRILL UK @drill_uk

Check out @cheshirecil a #drilluk & #Nationallottery funded research project re: personal social care & health budg… https://t.co/A54wf9dD75

1 day ago
DRILL UK DRILL UK @drill_uk

More human bingo at @JoePowellAWPF #AWPF18 @Barod_CIC #DRILLUK funded research. A great illustration of how the car… https://t.co/btlNybQDdE

6 days ago
DRILL UK DRILL UK @drill_uk

Disseminating the #DRILLUK funded toolkit at #AWPFtoolkit2018 conference using the ‘pledge card’ – exciting and inn… https://t.co/hq8USL7I9p

6 days ago
DRILL UK DRILL UK @drill_uk

@Awpf and @Barod_CIC team introducing #DRILLUK funded toolkit cards through a game of human bingo https://t.co/6ThkSimZYf

7 days ago
welshflier welshflier @welshflier

This is a toolkit to help self advocates to plan self-advocacy projects so you can check if they are working and pr… https://t.co/KMGFpQlApX

7 days ago
Research Institute for Disabled Consumers Research Institute for Disabled Consumers @RiDC_UK

Hate it? Then Rate it!
If you’ve been infuriated or let down by a product that’s no help for #disabled people, even… https://t.co/FTksT9mqq0

2 weeks ago
Barod CIC Barod CIC @Barod_CIC

Today Alan and Anne are recording the audio track to their slides from #cedr18 @CeDRLancs and then we will be putti… https://t.co/1gkgLIL3SX

2 weeks ago
Research Institute for Disabled Consumers Research Institute for Disabled Consumers @RiDC_UK

Hate it? Then Rate it!
If you’ve been infuriated or let down by a product that’s no help for #disabled people, even… https://t.co/4FeBRoNnyM

2 weeks ago
Research Institute for Disabled Consumers Research Institute for Disabled Consumers @RiDC_UK

Hate it? Then Rate it!
If you’ve been infuriated or let down by a product that’s no help for #disabled people, even… https://t.co/RyyWubxnZs

3 weeks ago
Dr Armineh Soorenian Dr Armineh Soorenian @ASoorenian

@ResearchAutism How can we make schools more inclusive for disabled children? Join me next week in Leeds to discuss… https://t.co/fftzBoyXzY

3 weeks ago
DRILL UK DRILL UK @drill_uk

2 great upcoming events offered by @BDA_Deaf a #drilluk & #NationalLottery funded project. Access to Justice
for th… https://t.co/ZGjLVAmCHu

3 weeks ago
DRILL UK DRILL UK @drill_uk

News: Focus Group #drilluk 4 Nations Research If you are a disabled person living in the Mid-Ulster area you are in… https://t.co/M153Xh1TQp

3 weeks ago
DRILL UK DRILL UK @drill_uk

A great blog from @ALLFIEUK a #drilluk funded research project about how Disabled children should feel more inclu… https://t.co/HBVdPmrGKt

3 weeks ago
DRILL UK DRILL UK @drill_uk

An innovative #drilluk and #Nationallottery funded project by @MentHealthFound showing the impact of a physical ex… https://t.co/TyieaRTZUH

3 weeks ago
ScarcityStudiosUK ScarcityStudiosUK @ScarcityStudios

23 Drillas – Music videos removed by West midlands (Birmingham) Police #DrillUK: https://t.co/x9YLpaAIFs via @YouTube

4 weeks ago
DRILL UK DRILL UK @drill_uk

Check out great DRILL tender opportunities #drilluk #NationalLottery
https://t.co/d1wkWBJn6g
Closing date 27 November 2018 12Noon.

4 weeks ago
DRILL UK DRILL UK @drill_uk

What a powerful piece! Really pleased to see the coverage of #drilluk #NationalLottery funded project by @uniofbedshttps://t.co/HLq52B5NEg

4 weeks ago
DRILL UK DRILL UK @drill_uk

Watt a powerful piece! Really please to see this coverage of #drilluk #NationalLottery funded project by @uniofbedshttps://t.co/7NUErBGO03

4 weeks ago
Research Institute for Disabled Consumers Research Institute for Disabled Consumers @RiDC_UK

Win an Amazon Alexa! Just write a product review for Rate it! and you’ll be eligible for our prize draw:… https://t.co/qnWel8x6Wg

4 weeks ago
Research Institute for Disabled Consumers Research Institute for Disabled Consumers @RiDC_UK

Win an Amazon Alexa! Just write a product review for Rate it! and you’ll be eligible for our prize draw:… https://t.co/OqB1Li3T5J

1 month ago
DRILL UK DRILL UK @drill_uk

More media interest from @themjcouk (£) in the #drilluk research funded by #NationalLottery published today from… https://t.co/gA8dMS3EIc

1 month ago
ScarcityStudiosUK ScarcityStudiosUK @ScarcityStudios

lets have a debate instead of one side opinions #mrmongomery #drilluk #drillmusic MR MONTGOMERY- IS DRILL TO BLAME… https://t.co/GAliFo2YD5

1 month ago
DRILL UK DRILL UK @drill_uk

And the media are following up on the new #drilluk funded research by @uniofbedsTGC on fears of disabled parents https://t.co/tUJQTlX8gV

1 month ago
DRILL UK DRILL UK @drill_uk

Great to see new research funded by #drilluk on fears of disabled parents published today by @uniofbedsTGC. Here’s… https://t.co/DqtgHGnyzt

1 month ago
DRILL UK DRILL UK @drill_uk

Great to see new research funded by #drilluk on fears of disabled parents published today by @uniofbeds. Here’s the… https://t.co/vCTfto8J51

1 month ago