Barriers and enablers to employment: Black disabled peoples living with Sickle Cell Disorders (SCD)

 

  • Lead partner: De Montfort University
  • Partner Organisation: Sickle Cell Society and the Organisation for Sickle Cell Anaemia Research Sandwell Company Ltd
  • DRILL Funding:  £99,896.00 (2 years)
  • Twitter: @dmuleicester
  • Contact: Professor Simon Dyson
  • Phone: 01162577751  or 07534918958
  • Email: [email protected]

 

This is a large 2 year research project led by De Montfort University in collaboration with the Sickle Cell Society and the Organisation for Sickle Cell Anaemia Research Sandwell Company Ltd.

Sickle Cell Disorder (SCD) is the most common single-gene condition in England. SCD primarily affects those of Black African, Black Caribbean, Indian, Middle Eastern and Mediterranean descent with 20,000 people living with SCD in England. This research is coproducing evidence with black and minority ethic people living with SCD about the barriers and enablers to employment.

The project is a priority as the experiences of people living with SCD is at the intersection of racist and disabling forms of discrimination. The numbers of people living with SCD will more than double over the next 20 years; learning from this research may have implications for those living with SCD worldwide.

The project is:
• Documenting work achievements of people with SCD

• Identifying enabling environments to employment and critiquing disabling barriers

• Producing two guides to Sickle Cell, Work and Employment for employers and employees

As the research progresses, it may illustrate important developments to the social model of disability. What if, for minority ethnic groups, interdependence is more valued than independence?

Black and ethnic communities do not have a central voice in disabled people’s initiatives.  UK research on SCD and employment is more than three decades old. So much work is to be done in identifying the contemporary barriers to independent living.

People living with SCD are leading the project advisory group, ensuring the voice of Black disabled people is at the forefront of the research.